About debra of America

I've Never Heard of EB


25,000 people live with Epidermolysis Bullosa (EB) in the United States.  1 out every 20,000 births is affected with EB.

Our Mission


We are the only U.S. not for profit providing all-inclusive support to the EB community, through funding research for a cure or treatment and by providing free programs and services those with EB.

What is EB


EB is a rare connective tissue disorder with many genetic and symptomatic variations, but all share the prominent symptoms of extremely fragile skin that blisters and tears from minor friction or trauma.  

debra of America History


We were founded in 1980 by Arlene Pessar because her son, Eric, was born with a severe form of EB.  Arlene and Eric testified before Congress six times during the 1980s urging Federal appropriations for research.

Donor Privacy Policy


debra of America respects the privacy of our donors and we are committed to safeguarding your personal information.  We will never share. sell, trade or lease your name or contact information to other organizations.

A registered 501(c)3


debra of America is a registered 501(c)3 with the Internal Revenue Service.  All donations and contributions are tax exempt to the fullest extent allowed by law.  OUr tax ID is 11-2519726.

Go to Our Website to Learn More

There's much to see here. So, take your time, look around, and learn all there is to know about us. We hope you enjoy our site and take a moment to drop us a line.

Go to debra.org

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