About debra of America

25,000 people live with Epidermolysis Bullosa (EB) in the United States.  1 out every 20,000 births is affected with EB.

We are the only U.S. not for profit providing all-inclusive support to the EB community, through funding research for a cure or treatment and by providing free programs and services those with EB.

EB is a rare connective tissue disorder with many genetic and symptomatic variations, but all share the prominent symptoms of extremely fragile skin that blisters and tears from minor friction or trauma.  

We were founded in 1980 by Arlene Pessar because her son, Eric, was born with a severe form of EB.  Arlene and Eric testified before Congress six times during the 1980s urging Federal appropriations for research.

debra of America respects the privacy of our donors and we are committed to safeguarding your personal information.  We will never share. sell, trade or lease your name or contact information to other organizations.

debra of America is a registered 501(c)3 with the Internal Revenue Service.  All donations and contributions are tax exempt to the fullest extent allowed by law.  OUr tax ID is 11-2519726.